Documentary Project

 

Trailer:  "In Our Right Mind: Alzheimer’s and Dementia’s Impact on Communities of Color" 

 

Everyday I come across more information and organizations dedicated to bringing awareness, support and resources so periodically I will be updating this list.

Resources & Information

Alzheimer’s Association:
The leading voluntary health organization in the US for Alzheimer’s research and care.

alz.org

 

Alzheimer’s Los Angeles:

They provide a host of free support services to people with Alzheimer’s, their families and communities

alzla.org

Us Against Alzheimer’s:

Works with organizations to help Alzheimer’s community and supports research and drug discovery. 

usagainstalzheimers.org

Center for Outreach In Alzheimers Aging and Community Health:

Focused on research and creative, community based outreach aimed at the African American community. 

coaachhealth.org

 

Leaders Engaged on Alzheimer’s Disease (LEAD):

90 member organizations committed to stopping Alzheimer's and dementia.

leadcoalition.org

Bioportfolio:

Source for current research in life sciences, pharmaceutical, clinical trials and healthcare news.

bioportfolio.com

Cure Alzheimer’s Fund:

Funds research with the highest probability of preventing, slowing, or reversing Alzheimer’s disease.

curealz.org

Alzheimers Foundation of America (AFA):

AFA's mission is to provide optimal care and services to individuals living with Alzheimer’s disease and related illnesses and to their families and caregivers. Alzfdn.org

Alzheimer’s Research UK:

Based in the United Kingdom focused on research Founded in 1992 to defeat Alzheimer's and dementia through research.

alzheimersresearchuk.org

Dementia Uk:

Although providing care services in the United Kingdom this site is a great resource for innovative care services and approaches.

dementiauk.org

Fisher Center for Alzheimer’s Research Foundation

Fisher foundation focused on research to find a cure and support for caregivers.

alzinfo.org

Clinical Trials

Many research teaching institutions and several of the organizations listed above post clinical trials on their website.

A convenient resource is The National Institute for Aging which is a locator for clinical trials.

Blogs

There are a host of wonderful blogs out there, most started by people who are caregivers for their loved ones with Alzheimer’s and Dementia. Here are a few that I look to for helpful information and insight:

Alzheimer's Reading Room
Bob Demarco’s blog is widely considered the gold standard providing a wealth of information, insights and resources. Their mission: to help everyone to better understand, cope, and communicate with a person living with dementia.

The Caregivers Depot

Terri Anderson created CareGiversDepot" as a centralized place to share stories,

tips, and advice”. She wanted a place to provide answers for long term care and support that was not available on line.

 

Caregivers.com

This is a general site for caregiving but their website blog has posts that shed light on the challenges faced by caregivers.

 

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