Trailer: "In Our Right Mind: Alzheimer’s and Dementia’s Impact on Communities of Color"
Everyday I come across more information and organizations dedicated to bringing awareness, support and resources so periodically I will be updating this list.
Resources & Information
The leading voluntary health organization in the US for Alzheimer’s research and care.
Alzheimer’s Los Angeles:
They provide a host of free support services to people with Alzheimer’s, their families and communities
Us Against Alzheimer’s:
Works with organizations to help Alzheimer’s community and supports research and drug discovery.
Center for Outreach In Alzheimers Aging and Community Health:
Focused on research and creative, community based outreach aimed at the African American community.
Leaders Engaged on Alzheimer’s Disease (LEAD):
90 member organizations committed to stopping Alzheimer's and dementia.
Source for current research in life sciences, pharmaceutical, clinical trials and healthcare news.
Cure Alzheimer’s Fund:
Funds research with the highest probability of preventing, slowing, or reversing Alzheimer’s disease.
Alzheimers Foundation of America (AFA):
AFA's mission is to provide optimal care and services to individuals living with Alzheimer’s disease and related illnesses and to their families and caregivers. Alzfdn.org
Alzheimer’s Research UK:
Based in the United Kingdom focused on research Founded in 1992 to defeat Alzheimer's and dementia through research.
Although providing care services in the United Kingdom this site is a great resource for innovative care services and approaches.
Fisher Center for Alzheimer’s Research Foundation
Fisher foundation focused on research to find a cure and support for caregivers.
Many research teaching institutions and several of the organizations listed above post clinical trials on their website.
A convenient resource is The National Institute for Aging which is a locator for clinical trials.
There are a host of wonderful blogs out there, most started by people who are caregivers for their loved ones with Alzheimer’s and Dementia. Here are a few that I look to for helpful information and insight:
Alzheimer's Reading Room
Bob Demarco’s blog is widely considered the gold standard providing a wealth of information, insights and resources. Their mission: to help everyone to better understand, cope, and communicate with a person living with dementia.
Terri Anderson created CareGiversDepot" as a centralized place to share stories,
tips, and advice”. She wanted a place to provide answers for long term care and support that was not available on line.
This is a general site for caregiving but their website blog has posts that shed light on the challenges faced by caregivers.